Familiescn2a foundation

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评论 13
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评论 13
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A
7 几个月前

I recently came across Familiescn2a Foundation and...

I recently came across Familiescn2a Foundation and their dedication to supporting families affected by SCN2A is truly inspiring. Their commitment to raising awareness and providing resources is commendable. Highly recommended!

M
7 几个月前

The website had useful information about our condi...

The website had useful information about our condition, but the design could be improved. Found some broken links, making it a bit frustrating to navigate. However, grateful for the resources provided.

A
8 几个月前

I want to express my sincere appreciation for the ...

I want to express my sincere appreciation for the work done by Familiescn2a Foundation. Their efforts to raise awareness about SCN2A and support affected families are truly commendable. They provide valuable resources and create a sense of community. Thank you!

S
10 几个月前

I have been supporting Familiescn2a Foundation for...

I have been supporting Familiescn2a Foundation for a while now and their work continues to impress me. Their dedication and passion to make a difference in the SCN2A community is truly remarkable. I highly recommend them to anyone in need of support or information.

M
10 几个月前

I have been working with Familiescn2a Foundation f...

I have been working with Familiescn2a Foundation for several months now and I must say that their work is truly incredible. The impact they have made in the SCN2A community is immeasurable. Their dedication and commitment to finding a cure for this rare disease is evident in everything they do. I am truly grateful for all the support they provide to families like mine. Keep up the amazing work!

C
11 几个月前

🎗️ The Familiescn2a Foundation has been a tremendo...

🎗️ The Familiescn2a Foundation has been a tremendous source of support for my family. Their commitment to helping families affected by SCN2A is truly inspiring. They provide valuable resources and create a sense of community amongst the SCN2A community. Thank you for everything!

S
1年以前

Familiescn2a Foundation has been a great help for ...

Familiescn2a Foundation has been a great help for my family. Their dedication and support have made a significant difference in our lives. They provide valuable resources and information that has helped us navigate the challenges of SCN2A. I highly recommend them to anyone in need. Thank you!

T
1年以前

💙 Familiescn2a Foundation is a true lifesaver for ...

💙 Familiescn2a Foundation is a true lifesaver for families affected by SCN2A. Their dedication and support are unmatched. The resources they provide have been instrumental in helping us navigate the challenges of this rare condition. Grateful for their existence!

T
1年以前

🌟🌟🌟🌟🌟 The Familiescn2a Foundation is doing an outs...

🌟🌟🌟🌟🌟 The Familiescn2a Foundation is doing an outstanding job in raising awareness about SCN2A. Their efforts in supporting families and advocating for better understanding of this rare condition is truly commendable. I appreciate their constant updates and informative content. Keep up the good work!

W
1年以前

I have been associated with a foundation that supp...

I have been associated with a foundation that supports families affected by SCN2A and their work speaks volumes about their commitment. They provide vital resources, guidance, and support to families in need. I am grateful for their efforts and highly recommend them to others.

S
1年以前

I recently came across a foundation that works tir...

I recently came across a foundation that works tirelessly to support families affected by SCN2A. They offer numerous resources and information that is truly invaluable. The work they do is amazing and I'm grateful for their support. Highly recommend!

D
1年以前

🌟 Familiescn2a Foundation is doing a fantastic job...

🌟 Familiescn2a Foundation is doing a fantastic job in raising awareness about SCN2A. Their support for families like mine has been invaluable. They go above and beyond to ensure that families have the information and resources they need. Highly recommend their services!

B
1年以前

Familiescn2a Foundation has been an incredible sup...

Familiescn2a Foundation has been an incredible support system for families like mine. Their resources and information have been instrumental in helping us understand SCN2A better. I am grateful for the work they do and highly recommend their services.

关于Familiescn2a foundation

Familiescn2a 基金会:帮助受罕见癫痫和自闭症影响的家庭

Familiescn2a Foundation 是一家非营利组织,由因 SCN2A 基因变化而被诊断患有罕见癫痫和自闭症的儿童的父母创立。该基金会旨在通过教育、宣传和支持来增强受这些情况影响的家庭的能力。

癫痫和自闭症是两种神经系统疾病,会对受影响者的生活产生重大影响。癫痫的特点是反复发作,而自闭症是一种发育障碍,会影响社交、沟通和行为。这两种情况都可能由基因突变引起,包括 SCN2A 基因的变化。

Familiescn2a 基金会的创建旨在为患有这些罕见形式的癫痫症和自闭症的家庭提供资源。该基金会提供有关这些疾病的教育材料,包括有关诊断、治疗方案和研究进展的信息。他们还提供宣传服务,帮助家庭了解医疗保健系统并为他们所爱的人获得适当的护理。

除了教育和宣传服务外,Familiescn2a 基金会还为受这些情况影响的家庭提供支持。他们提供点对点支持小组,家庭可以在其中与经历过类似经历的其他人联系。他们还组织家庭静修会等活动,让家人可以在一个支持性的环境中聚在一起。

Familiescn2a 基金会的主要目标之一是提高人们对这些罕见形式的癫痫和自闭症的认识。通过提高公众对这些情况的认识,他们希望减少围绕他们的污名化,同时促进医疗保健提供者之间的理解。

Familiescn2a 基金会依靠个人和组织的捐款来资助他们的项目。所有捐款都直接用于支持他们的使命:帮助因 SCN2A 基因变化而患有罕见癫痫和自闭症的家庭。

如果您或您认识的人受到这些罕见形式的癫痫症或自闭症的影响,Familiescn2a 基金会将为您提供帮助。访问他们的网站以了解有关他们的计划和服务的更多信息,或捐款以支持他们的使命。我们可以一起帮助受这些疾病影响的家庭,并促进更好地了解这些罕见疾病。

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Familiescn2a foundation

Familiescn2a foundation

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