Foundation for sarcoidosis research

Foundation for sarcoidosis research 审查

评论 13
4.2
评论 13
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J
7 几个月前

I recently discovered an amazing organization that...

I recently discovered an amazing organization that focuses on sarcoidosis research. They are doing excellent work in raising awareness and funding for this challenging disease. The website offers a wealth of information and resources for patients and their families. I'm truly impressed by their commitment and dedication. Keep up the good work!

C
8 几个月前

Foundation for Sarcoidosis Research is doing a gre...

Foundation for Sarcoidosis Research is doing a great job in raising awareness and funding for sarcoidosis research. The website is informative and user-friendly, providing valuable resources and support to patients and their families. I highly recommend this organization!

J
9 几个月前

I recently discovered an incredible organization d...

I recently discovered an incredible organization dedicated to sarcoidosis research. Their work in raising awareness and funding research is remarkable. The website offers valuable resources and support. I highly recommend the Foundation for Sarcoidosis Research to anyone interested in supporting this cause.

B
10 几个月前

👍 This organization is making a real impact on the...

👍 This organization is making a real impact on the sarcoidosis community. Their efforts in raising awareness and funding for research are highly commendable. The website is easy to navigate and provides valuable resources and support. I'm grateful for the work they do, and I am proud to support the Foundation for Sarcoidosis Research!

C
1年以前

I recently came across a fantastic organization th...

I recently came across a fantastic organization that focuses on sarcoidosis research. They are doing incredible work in raising awareness and funding for this challenging disease. The website is a wealth of information, providing useful resources and support for patients and their families. I'm truly impressed by the Foundation for Sarcoidosis Research and their dedication to making a difference. Keep up the great work!

L
1年以前

I recently came across a wonderful organization th...

I recently came across a wonderful organization that focuses on sarcoidosis research. Their dedication and efforts to raise awareness and support patients are truly admirable. The website is well-designed and offers a wealth of information and resources. I highly recommend the Foundation for Sarcoidosis Research!

B
1年以前

🙌 The Foundation for Sarcoidosis Research is a fan...

🙌 The Foundation for Sarcoidosis Research is a fantastic organization. They are making a real difference in the lives of sarcoidosis patients. The website provides valuable resources and support. I'm grateful for their efforts in raising awareness and funding for research. Keep up the good work! 👏

E
1年以前

The Foundation for Sarcoidosis Research is doing a...

The Foundation for Sarcoidosis Research is doing a tremendous job in raising awareness and funding for sarcoidosis research. Their dedication and commitment to finding a cure for this rare disease is truly commendable. I am grateful for the work they are doing and the support they provide to patients and their families. The website is informative and user-friendly, making it easy to access valuable resources and information. I highly recommend this organization to anyone looking to support a worthy cause.

A
1年以前

I appreciate the work done by the Foundation for S...

I appreciate the work done by the Foundation for Sarcoidosis Research. Their commitment to raising awareness and funding research for sarcoidosis is commendable. The website is informative and provides valuable resources for patients and their families. I highly recommend this organization!

1
1年以前

As someone affected by sarcoidosis, I am glad to h...

As someone affected by sarcoidosis, I am glad to have found the Foundation for Sarcoidosis Research. They are doing incredible work in raising awareness and funding research for this disease. The website is user-friendly and offers a wealth of resources and support. Their commitment is truly commendable. Thank you!

K
1年以前

I'm really pleased with the Foundation for Sarcoid...

I'm really pleased with the Foundation for Sarcoidosis Research and the work they are doing. The website is easy to navigate and provides helpful information for patients and caregivers. I appreciate their dedication to raising awareness and finding a cure for sarcoidosis. Highly recommend!

P
1年以前

The Foundation for Sarcoidosis Research is doing a...

The Foundation for Sarcoidosis Research is doing amazing work in their efforts to raise awareness and support research for this disease. The website is user-friendly and provides valuable information and resources. I'm grateful for their dedication and the difference they are making in the lives of patients and their families.

关于Foundation for sarcoidosis research

结节病研究基金会 (FSR) 是一个非营利组织,致力于寻找结节病的治疗方法并改善患有这种疾病的患者的护理。结节病是一种炎症性疾病,会影响身体的多个器官,包括肺、心脏、皮肤和眼睛。它会引起一系列症状,例如呼吸急促、咳嗽、疲劳、关节疼痛和肿胀。

FSR 由一群对缺乏结节病研究感到沮丧的患者于 2000 年创立。从那时起,它已发展成为该领域的领先组织之一。 FSR 的使命是资助结节病研究并为患者及其家人提供支持。

FSR 实现其使命的关键方式之一是资助研究项目。自成立以来,该组织已资助了超过 400 万美元的赠款。这些赠款支持了关于遗传学、免疫学和结节病治疗方案等主题的研究。

除了直接资助研究项目外,FSR 还与其他组织合作,以增进对结节病的了解。例如,它与约翰霍普金斯大学医学院等学术机构合作,对结节病的新疗法进行临床试验。

FSR 工作的另一个重要方面是为患者及其家人提供支持服务。这包括关于结节病的教育资源以及支持小组,人们可以在这些小组中与有类似经历的其他人联系。

FSR 还通过提高决策者和医疗保健专业人员对这种疾病的认识来代表结节病患者进行宣传。这包括游说州和联邦层面的努力,以增加对结节病等罕见疾病的研究资金。

总的来说,结节病研究基金会在促进我们对这种复杂疾病的理解方面发挥着重要作用,同时为受其影响的人提供急需的支持服务。通过致力于寻找治疗肉瘤的方法,FSC 继续在改善护理结果方面取得长足进步,同时为那些受这种衰弱状况影响的人不懈地倡导。

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Foundation for sarcoidosis research

Foundation for sarcoidosis research

4.2