Huntingtons disease association northern ireland

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J
9 几个月前

I am so impressed with the support and resources p...

I am so impressed with the support and resources provided by this organization. Huntingtons disease association northern ireland has been instrumental in helping individuals and families affected by Huntington's disease. Their website, hdani.org.uk, offers a wealth of information and support. The staff goes above and beyond to ensure that those affected by the disease receive the help they need. I highly recommend this association to anyone seeking support for Huntington's disease.

J
10 几个月前

❤️ Huntingtons disease association northern irelan...

❤️ Huntingtons disease association northern ireland is doing incredible work in supporting individuals and families affected by Huntington's disease. Their website, hdani.org.uk, is a fantastic resource for information, support, and upcoming events. The staff is compassionate and dedicated, providing invaluable support during difficult times. Keep up the amazing work! ❤️

P
1年以前

I am so grateful for the support and resources pro...

I am so grateful for the support and resources provided by Huntingtons disease association northern ireland. Their website, hdani.org.uk, is a valuable source of information and the support groups they organize are extremely helpful. The staff is caring and always ready to lend a listening ear. Their dedication to the Huntington's disease community is truly inspiring. Thank you for all that you do!

O
1年以前

The support provided by this organization is truly...

The support provided by this organization is truly exceptional. They have a great understanding of the needs of individuals and families affected by Huntington's disease. The website, hdani.org.uk, is a valuable resource for information and support. They offer a wide range of services, including support groups, educational resources, and events. The staff is knowledgeable and compassionate. My overall experience with Huntingtons disease association northern ireland has been great.

R
1年以前

🌟 Huntingtons disease association northern ireland...

🌟 Huntingtons disease association northern ireland has been a lifeline for me and my family. The support and information they provide through their website, hdani.org.uk, are invaluable. The staff is understanding and compassionate, ensuring that individuals and families affected by Huntington's disease receive the help they need. I cannot express my gratitude enough! 🌟

T
1年以前

I am very impressed with the services provided by ...

I am very impressed with the services provided by Huntingtons disease association northern ireland. The organization is dedicated to supporting individuals and families affected by Huntington's disease. Their website, hdani.org.uk, is well-designed and user-friendly, making it easy to find information about the disease, support groups, and upcoming events. The resources available on their website are informative and helpful. I appreciate the effort they put into raising awareness about Huntington's disease and providing support to those in need. Overall, I would rate Huntingtons disease association northern ireland as excellent.

H
1年以前

🌟 I want to thank Huntingtons disease association ...

🌟 I want to thank Huntingtons disease association northern ireland for the incredible work they do in supporting individuals and families affected by Huntington's disease. Their website, hdani.org.uk, is an excellent source of information and resources. The support groups they organize provide a safe space for sharing experiences and receiving emotional support. The staff is friendly and always ready to assist. The impact they have made on the Huntington's disease community is truly remarkable. 🌟

S
1年以前

I am grateful to the organization that helps indiv...

I am grateful to the organization that helps individuals and families affected by Huntington's disease. Their website, hdani.org.uk, is very informative and easy to navigate. The resources provided are comprehensive and have been invaluable to me. The support groups they offer are a lifeline for many, providing a caring and understanding community. I cannot commend Huntingtons disease association northern ireland enough for their dedication and commitment to those affected by this disease. They are truly making a difference.

关于Huntingtons disease association northern ireland

亨廷顿病协会北爱尔兰:为受亨廷顿病影响的人提供支持和信息

北爱尔兰亨廷顿病协会 (HDANI) 是一家注册慈善机构,为受亨廷顿病 (HD) 影响的个人和家庭提供支持和信息。该组织成立于 1989 年,旨在改善北爱尔兰 HD 患者的生活质量。

亨廷顿舞蹈病是一种影响大脑的遗传性疾病,导致认知、运动和精神功能的进行性恶化。它是由亨廷顿基因的突变引起的,该突变导致大脑中蛋白质的异常积累。症状通常出现在 30-50 岁之间,可能包括不自主运动、行走或说话困难、情绪波动或抑郁。

HD 对个人及其家庭的影响可能是毁灭性的。但是,HDANI 旨在通过各种服务提供支持,例如信息提供和咨询服务;家庭支持小组;青年团体;宣传服务;针对与 HD 患者打交道的专业人员的培训和教育计划。

信息提供和咨询服务

HDANI 为患有 HD 的个人或那些照顾患有这种疾病的人的人提供信息提供和建议服务。 HDANI 的团队对与亨廷顿病相关的所有方面都有广泛的了解,包括症状管理策略;可用的治疗方案;政府机构等提供的经济援助计划

家庭支持小组

北爱尔兰各地定期举行家庭支持小组,受亨廷顿舞蹈症影响的人们可以聚在一起分享经验并互相提供情感支持。这些会议由训练有素的志愿者主持,他们有照顾患有这种疾病的人的亲身经历。

青年团体

HDANI 还运营着针对年龄在 8 至 25 岁之间的年轻人的青年团体,这些年轻人直接或通过被诊断的家庭成员间接受到亨廷顿病的影响。这些团体为年轻人提供机会,让他们结识与自己同龄、经历相似经历的其他人,并参与促进社交和自尊的有趣活动。

宣传服务

HDANI 为患有 HD 的个人或那些照顾患有这种疾病的人的人提供宣传服务。 HDANI 的团队可以帮助人们驾驭复杂的医疗保健系统,获得政府机构提供的经济援助计划,并在困难时期提供支持。

培训与教育计划

HDANI 为从事亨廷顿病患者工作的专业人员提供培训和教育计划。这些计划旨在提高医疗保健专业人员、社会工作者、教师等对疾病的认识,以便他们能够更好地支持患有 HD 的个人及其家人。

总之,北爱尔兰亨廷顿氏病协会是北爱尔兰任何受亨廷顿氏病影响的人的重要资源。该组织提供一系列旨在改善患有这种疾病的人的生活质量的服务,包括信息提供和咨询服务;家庭支持小组;青年团体;宣传服务;培训和教育计划。如果您或您认识的人在北爱尔兰受到亨廷顿舞蹈症的影响,请立即联系 HDANI!

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Huntingtons disease association northern ireland

Huntingtons disease association northern ireland

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