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K
8 几个月前

👍 The MMRF has made significant contributions to m...

👍 The MMRF has made significant contributions to multiple myeloma research. They have helped raise awareness and provide support to patients and their families. Their efforts are truly commendable.

S
9 几个月前

I recently came across this organization while doi...

I recently came across this organization while doing some research on multiple myeloma. I'm impressed by their dedication to finding a cure and helping patients. Their website provides valuable information and resources.

M
11 几个月前

They do excellent work in advancing research for m...

They do excellent work in advancing research for multiple myeloma. I have been following their progress for a while and I am amazed by the impact they have made. The MMRF is truly making a difference in the lives of patients and their families.

Y
1年以前

As someone who has been personally affected by mul...

As someone who has been personally affected by multiple myeloma, I'm grateful for the MMRF and the work they do. Their commitment to finding a cure is inspiring, and their website has been a helpful source of information for me.

G
1年以前

I want to express my gratitude to the MMRF. Their ...

I want to express my gratitude to the MMRF. Their dedication to finding a cure for multiple myeloma is truly inspiring. They provide valuable resources and support to patients and families, making a real difference in their lives.

J
1年以前

The MMRF deserves applause for their dedication to...

The MMRF deserves applause for their dedication to multiple myeloma research. Their website is user-friendly, and they provide valuable resources for patients and caregivers. Keep up the good work!

J
1年以前

The Multiple Myeloma Research Foundation is doing ...

The Multiple Myeloma Research Foundation is doing crucial work in the field of multiple myeloma. They provide support to patients and their families, and their website is a valuable resource. Kudos to them for their efforts!

D
3 几年前

不要向该组织捐款!!!!!两年前我犯了一个捐赠的错误,现在由于某种原因,我收到了他们的直接邮件处理选...

不要向该组织捐款!!!!!两年前我犯了一个捐赠的错误,现在由于某种原因,我收到了他们的直接邮件处理选项垃圾邮件。他们分不清财政捐助者和病人之间的区别,这显然浪费了那些宝贵的资金。在他们的网站上取消订阅的零选项。他们希望你给他们写一封信,邮资和时间由你自己承担。所以是的,这是那些客户服务差且很少考虑捐助者的组织之一。如果您的亲人患有这种疾病,请考虑另一个致力于此事业的组织。这个特别的似乎运行得很糟糕,更不用说考虑不周了。给一颗星,因为我不能给零。

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关于Multiple Myeloma Research Foundation

多发性骨髓瘤研究基金会 (MMRF) 是一个非营利组织,致力于寻找治疗多发性骨髓瘤的方法,多发性骨髓瘤是一种影响骨髓浆细胞的癌症。 MMRF 由 Kathy Giusti 于 1998 年创立,她在 37 岁时被诊断出患有多发性骨髓瘤。从那时起,MMRF 已成为抗击这种疾病的主要组织之一。

MMRF 的使命是加速新疗法的研究,并最终为每位诊断出患有多发性骨髓瘤的患者找到治愈方法。为了实现这一目标,他们开发了一种创新的研究方法,专注于研究人员和临床医生之间的协作和数据共享。

MMRF 的一项关键举措是他们的 CoMMpass 研究,它代表“将多发性骨髓瘤的临床结果与遗传概况的个人评估相关联”。这项研究涉及在数年内收集数千名多发性骨髓瘤患者的数据,以更好地了解不同的基因特征如何影响治疗结果。从这项研究中收集的数据将用于根据患者的个体基因构成为患者开发更加个性化的治疗方法。

除了他们的研究计划外,MMRF 还通过他们的患者导航中心为患者及其家人提供支持和资源。该中心提供由训练有素的专业人员提供的免费一对一支持,他们可以帮助患者完成护理过程的各个方面。

MMRF 因其在推进研究和改善患者治疗效果方面的工作而获得了无数赞誉。 2016 年,他们因健全的财务管理以及对问责制和透明度的承诺而获得 Charity Navigator 的最高评级——四星。

总体而言,多发性骨髓瘤研究基金会是一个在寻找多发性骨髓瘤治愈方法方面取得重大进展的组织。他们创新的研究方法和对合作的奉献使他们成为该领域的领导者。如果您或您认识的人受到多发性骨髓瘤的影响,请考虑通过捐赠或参与他们全年的众多筹款活动之一来支持这一重要事业。

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Multiple Myeloma Research Foundation

Multiple Myeloma Research Foundation

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