National adrenal diseases foundation

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F
8 几个月前

This foundation has been a tremendous help for me ...

This foundation has been a tremendous help for me since I was diagnosed with an adrenal disease. Their website is filled with useful information, from articles to support groups. The National Adrenal Diseases Foundation is doing important work for the adrenal disease community and I highly recommend their resources.

I
9 几个月前

The National Adrenal Diseases Foundation is an ama...

The National Adrenal Diseases Foundation is an amazing organization that provides invaluable support and resources to those affected by adrenal diseases. Their website is informative and user-friendly, making it easy to find the information I need. I appreciate their dedication to raising awareness and advocating for those living with these conditions. The work they do is truly commendable.

K
9 几个月前

😃 The National Adrenal Diseases Foundation has bee...

😃 The National Adrenal Diseases Foundation has been a lifeline for me since I was diagnosed with an adrenal disease. Their website provides comprehensive information and the support groups have been an invaluable source of comfort and guidance. I am grateful for the work they do in raising awareness and supporting those affected by these conditions.

M
10 几个月前

I found the National Adrenal Diseases Foundation's...

I found the National Adrenal Diseases Foundation's website while looking for information on adrenal diseases, and I can't express how helpful it has been. Their content is well-written, free of jargon, and offers valuable insights. Their dedication to supporting the adrenal disease community is truly admirable.

E
10 几个月前

I have been following the National Adrenal Disease...

I have been following the National Adrenal Diseases Foundation for quite some time now, and I must say they are doing an outstanding job. Their website is a treasure trove of information, with articles, resources, and support groups. It's great to see such an organization providing so much help and support to those in need.

P
1年以前

👍 The National Adrenal Diseases Foundation has bee...

👍 The National Adrenal Diseases Foundation has been an incredible resource for me since I was diagnosed with an adrenal disease. The community they've built is supportive and understanding. The information available on their website is comprehensive and easy to understand. I am grateful for their dedication to raising awareness and providing invaluable support.

B
1年以前

I have been searching for information on adrenal d...

I have been searching for information on adrenal diseases, and the National Adrenal Diseases Foundation's website has been incredibly helpful. The content is well-researched, easy to understand, and free from unnecessary jargon. Their dedication to supporting individuals with adrenal diseases is evident through their informative articles and resources.

T
1年以前

💯 The National Adrenal Diseases Foundation is trul...

💯 The National Adrenal Diseases Foundation is truly exceptional. Their website has all the information I need to better understand and manage my adrenal disease. The resources and support they provide are invaluable and have made a real difference in my life. Their commitment to the adrenal disease community is unwavering.

L
1年以前

I recently came across this foundation and I am so...

I recently came across this foundation and I am so impressed with the resources they provide for individuals with adrenal diseases. The website is very helpful with valuable information, support groups, and events. They have created a wonderful community and it's fantastic to see the genuine care they have for the people they serve.

T
1年以前

The National Adrenal Diseases Foundation's website...

The National Adrenal Diseases Foundation's website has been an excellent resource for me. The information is clear, concise, and easily accessible. They have created a supportive community that has had a positive impact on my life. I'm grateful for their dedication and the work they do to raise awareness and support individuals with adrenal diseases.

关于National adrenal diseases foundation

国家肾上腺疾病基金会 (NADF) 是一个非营利组织,旨在为肾上腺疾病患者提供支持、教育和宣传。该基金会于 1985 年由一群意识到需要更多有关肾上腺疾病的信息和资源的患者成立。

肾上腺疾病是影响位于肾脏顶部的肾上腺的疾病。这些腺体产生调节各种身体功能的激素,如血压、新陈代谢和压力反应。肾上腺疾病会导致激素产生失衡,从而导致一系列症状,例如疲劳、体重增加或减轻、肌肉无力和情绪变化。

NADF 为肾上腺疾病患者提供宝贵的资源,包括有关诊断和治疗方案的教育材料。该基金会还提供支持小组,患者可以在这些小组中与其他有相似经历的人联系。

除了为肾上腺疾病患者提供支持外,NADF 还积极参与宣传工作,以提高人们对这些疾病的认识。该基金会与医疗保健专业人员和政策制定者密切合作,以确保患者得到适当的护理和获得必要的药物。

肾上腺疾病患者面临的最紧迫的问题之一是获得氢化可的松药物。氢化可的松是一种类固醇激素,用于治疗各种疾病,包括由肾上腺皮质醇生成不足引起的艾迪生病。由于最近在 COVID-19 大流行危机期间全球氢化可的松供应短缺,许多患者都难以获得这种救命药物。

在此期间,NADF 一直在不懈努力,通过他们的网站更新来倡导增加氢化可的松的可用性。他们一直在其网站上定期更新不同国家/地区的氢化可的松供应状况,以便人们了解这一点。

总之,如果您或您认识的人被诊断出患有肾上腺疾病,那么国家肾上腺疾病基金会应该是您寻求支持、教育和宣传的首选资源。该基金会致力于改善肾上腺疾病患者的生活,这体现在他们努力提供宝贵的资源并提高人们对这些疾病的认识。在 NADF 的帮助下,患者可以感到有能力控制自己的病情并过上充实的生活。

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National adrenal diseases foundation

National adrenal diseases foundation

4.3