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C
7 几个月前

I recently discovered an amazing organization that...

I recently discovered an amazing organization that supports individuals affected by Polycystic Kidney Disease. Their website is filled with invaluable resources, support groups, and a wealth of information. I highly recommend Pkd foundation to anyone seeking guidance and assistance in dealing with this condition.

G
10 几个月前

With the help of Pkd foundation, navigating life w...

With the help of Pkd foundation, navigating life with Polycystic Kidney Disease has become much more manageable. Their website is a treasure trove of resources and their support has been invaluable to me. I highly recommend this organization to anyone in need of assistance.

S
10 几个月前

I have been impressed with the work of Pkd foundat...

I have been impressed with the work of Pkd foundation since I discovered them. Their website is a valuable source of information for individuals and families affected by Polycystic Kidney Disease. The support they provide is exceptional. Thank you for all you do!

R
11 几个月前

It's amazing to see an organization like Pkd found...

It's amazing to see an organization like Pkd foundation making such a positive impact on the lives of individuals with Polycystic Kidney Disease. The support they provide through their website, support groups, and educational resources is remarkable. Thank you for all you do!

W
11 几个月前

😊 I want to express my gratitude to Pkd foundation...

😊 I want to express my gratitude to Pkd foundation for the amazing work they are doing. The support and information they provide have been invaluable to me and many others affected by Polycystic Kidney Disease. The team is incredibly compassionate and understanding. Keep up the good work! 👍

R
11 几个月前

The impact of the Pkd foundation cannot be oversta...

The impact of the Pkd foundation cannot be overstated. Their dedication to improving the lives of those affected by Polycystic Kidney Disease is truly commendable. The website is a valuable resource for education, support, and awareness. I am grateful for their ongoing efforts.

A
1年以前

Pkd foundation has proven to be an incredible reso...

Pkd foundation has proven to be an incredible resource for those affected by Polycystic Kidney Disease. Their website offers a wealth of information, support groups, and educational materials. I am grateful for their dedication to making a difference in the lives of individuals like me.

F
1年以前

I have been a supporter of Pkd foundation for seve...

I have been a supporter of Pkd foundation for several years now and I must say they are doing an excellent job in raising awareness about Polycystic Kidney Disease. The resources and information provided on their website are comprehensive and helpful. I am particularly grateful for their efforts in driving research and funding towards finding a cure for this condition. Keep up the great work!

S
1年以前

👏 I am extremely impressed with the work of Pkd fo...

👏 I am extremely impressed with the work of Pkd foundation. Their website is a valuable source of information for those affected by Polycystic Kidney Disease. The dedication and support they offer are truly admirable. Keep up the great work! 💪

B
1年以前

The Pkd foundation is truly making a difference in...

The Pkd foundation is truly making a difference in the lives of people with Polycystic Kidney Disease. Their website is a treasure trove of useful information and resources. I appreciate their dedication to raising awareness and funding research for a cure. Thank you for all you do!

N
1年以前

I recently came across a fantastic organization de...

I recently came across a fantastic organization dedicated to supporting people affected by Polycystic Kidney Disease. They provide valuable resources and a strong support network for individuals and families dealing with the challenges of this condition. The website is informative and easy to navigate. Highly recommended!

S
1年以前

I recently came across Pkd foundation, and it has ...

I recently came across Pkd foundation, and it has been a game-changer for me. The support and resources they provide for individuals and families dealing with Polycystic Kidney Disease are invaluable. I am grateful for the work they do in raising awareness and funding research.

关于Pkd foundation

PKD 基金会:为多囊肾病患者带来希望

多囊肾病 (PKD) 是一种遗传性疾病,影响着全世界数百万人。在这种情况下,囊肿会在肾脏中生长,导致它们随着时间的推移而增大并失去功能。 PKD 可导致肾衰竭,这需要透析或肾移植才能生存。

PKD 基金会是一个致力于为这种衰弱性疾病寻找治疗方法的组织。他们资助研究,为患者辩护,并为所有受 PKD 影响的人建立社区。

研究经费

PKD 基金会自 1982 年以来一直资助研究。他们已投资超过 5000 万美元用于研究资助和研究金,以寻找更好的治疗方法并最终治愈 PKD。

他们对研究的关注在理解疾病的潜在机制方面取得了重大突破。由该基金会资助的研究人员已经确定了几个导致 PKD 的基因,为可以减缓或阻止其进展的靶向治疗铺平了道路。

宣传工作

除了资助研究外,PKD 基金会还代表患者向各级政府的决策者进行宣传。他们孜孜不倦地工作,以确保受 PKD 影响的人能够获得优质护理和治疗选择。

他们的倡导工作包括游说国会增加对医学研究的资助,与保险公司合作以改善保险范围选项,以及与其他患者倡导团体合作解决影响 PKD 等慢性病患者的常见问题。

社区建设

该基金会还提供专为多囊肾病患者设计的支持服务和资源。他们的在线社区将来自世界各地的患者、护理人员、研究人员和医疗保健专业人员联系在一起,分享他们在这种情况下的经历。

通过他们的网站论坛和社交媒体渠道(如 Facebook 群组或 Twitter 聊天),他们提供有关正在开发的新疗法的信息以及管理症状的技巧,例如疼痛管理技术或可能有助于缓解与这种情况相关的一些症状的饮食改变。

结论

总之,PKD 基金会是一个专门致力于寻找更好的治疗方法并最终治愈多囊肾病 (PKD) 的组织。该基金会资助开创性的科学研究和临床试验,旨在发现治疗这种使人衰弱的疾病的新方法,同时代表世界各地的患者不懈地倡导,使他们能够在没有任何经济负担的情况下获得优质护理!凭借其通过在线提供的各种支持服务和资源在多囊肾病患者周围建立社区的坚定承诺 - 难怪为什么在与这种威胁生命的疾病作斗争时有这么多人信任他们!

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Pkd foundation

Pkd foundation

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