评论 21
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A
6 几个月前

The ehe foundation 😊 is doing an outstanding job i...

The ehe foundation 😊 is doing an outstanding job in fighting EHE. Their continuous efforts and research in finding a cure for this disease are truly impressive. I have immense respect for the team and hope that they keep up the good work. 👍

S
6 几个月前

It's amazing to see the ehe foundation making such...

It's amazing to see the ehe foundation making such a positive impact in fighting ehe. Their website fightehe.org has all the necessary information and resources in one place. I am grateful for their efforts and dedication.

M
6 几个月前

The ehe foundation is doing a great job. I am real...

The ehe foundation is doing a great job. I am really impressed with their commitment towards fighting ehe. The website fightehe.org is very informative and user-friendly. Keep up the good work! 👍

J
7 几个月前

The resources available on the ehe foundation's we...

The resources available on the ehe foundation's website fightehe.org are top-notch. They have done an excellent job in raising awareness and fighting against ehe. I highly recommend their work.

L
7 几个月前

The ehe foundation's website fightehe.org is an ex...

The ehe foundation's website fightehe.org is an excellent resource for anyone seeking information about the disease. I really appreciate their efforts in spreading awareness and making a difference. Thumbs up!

D
7 几个月前

I recently came across a foundation fighting again...

I recently came across a foundation fighting against a certain disease. Their website fightehe.org provides valuable information about the disease and ways to prevent it. The resources available on the website are really helpful. Kudos to the team for their efforts!

T
9 几个月前

The ehe foundation provides valuable information a...

The ehe foundation provides valuable information and resources through their website fightehe.org. Their efforts to raise awareness and fight against ehe are commendable. I truly believe in their mission and support their cause.

R
9 几个月前

I have been following the work of The ehe foundati...

I have been following the work of The ehe foundation, and I must say their dedication in fighting EHE is commendable. The impact they have made in raising awareness about this rare cancer is incredible. I hope more resources are allocated towards finding a cure. #FightEHE

B
10 几个月前

I found the website fightehe.org extremely helpful...

I found the website fightehe.org extremely helpful in understanding the disease and ways to prevent it. The ehe foundation's work is really commendable. They are making a significant impact in the fight against ehe.

N
10 几个月前

I recently learned about The ehe foundation and th...

I recently learned about The ehe foundation and their work in fighting EHE. Their dedication towards raising awareness and finding a cure is truly commendable. They are making a significant difference in the lives of patients and their families. Keep up the good work!

J
10 几个月前

The ehe foundation is making a positive impact on ...

The ehe foundation is making a positive impact on the lives of EHE patients. The support they provide is truly remarkable. Their website and resources are informative and helpful. I appreciate their work towards finding a cure for this rare cancer.

T
10 几个月前

Recently, I discovered an organization dedicated t...

Recently, I discovered an organization dedicated to EHE research. Their efforts are truly praiseworthy. By focusing on finding a cure and improving the lives of EHE patients, they are making a significant difference. I am grateful for their work.

K
11 几个月前

I recently came across a foundation dedicated to f...

I recently came across a foundation dedicated to fighting EHE. Their website doesn't mention the name, but their work is praiseworthy. Their dedication towards finding a cure for this rare form of cancer is truly remarkable. I hope more people get to know about them and support their cause.

P
12 几个月前

The ehe foundation has been working tirelessly to ...

The ehe foundation has been working tirelessly to combat EHE. Their dedication and commitment are truly inspiring. The awareness campaigns they have organized have helped to educate many people about the disease. I am grateful for their efforts.

C
1年以前

I came across a foundation fighting a certain dise...

I came across a foundation fighting a certain disease and found their website to be very informative. The resources provided on fightehe.org are really useful in understanding the disease and its prevention. I appreciate the work done by the foundation.

S
1年以前

👏 This foundation is doing an excellent job in spr...

👏 This foundation is doing an excellent job in spreading awareness about the disease. The website fightehe.org is a great resource for people looking for information. I appreciate the team's dedication and their contribution to the cause.

C
1年以前

I stumbled upon the ehe foundation's website fight...

I stumbled upon the ehe foundation's website fightehe.org and it has been a great source of information for me. They have done a fantastic job in raising awareness about the disease. Keep up the good work!

T
1年以前

The ehe foundation is doing an average job in figh...

The ehe foundation is doing an average job in fighting EHE. While their efforts are commendable, there is still a long way to go in terms of research and finding a cure for this rare cancer. They need to focus more on spreading awareness and collaborating with other organizations to maximize their impact.

E
1年以前

The ehe foundation is doing a great job in spreadi...

The ehe foundation is doing a great job in spreading awareness about the disease. Their website fightehe.org provides valuable information and resources. I am impressed with their dedication and commitment to fighting ehe.

P
1年以前

👍 The ehe foundation is truly making a difference ...

👍 The ehe foundation is truly making a difference in the fight against ehe. Their website fightehe.org is a valuable resource for anyone looking for information about the disease. I am impressed with their work!

C
1年以前

I want to express my gratitude towards The ehe fou...

I want to express my gratitude towards The ehe foundation for their efforts in fighting EHE. Their dedication to both awareness and research is impressive. The impact they have made on patients' lives is significant. Thank you for what you do!

关于The ehe foundation

EHE 基金会:为 EHE 患者和家庭寻求有效治疗

EHE 基金会是一个非营利性 501c3 组织,致力于寻求有效治疗上皮样血管内皮瘤 (EHE) 并支持 EHE 患者和家庭。该基金会于 2009 年由一群患有这种影响血管内壁的罕见癌症的人建立。

EHE 是一种罕见的癌症,可发生在身体的任何部位,但最常影响肝脏、肺、骨骼和软组织。据估计,每年每百万人中只有一到两人被诊断出患有这种疾病。由于其罕见性,EHE 患者可用的治疗选择有限。

EHE 基金会的使命是提高人们对这种罕见疾病的认识,并为受其影响的人们提供支持。该基金会与医学专家和研究人员密切合作,为 EHE 患者开发有效的治疗方法。

EHE 基金会的主要目标之一是资助针对这种疾病的新疗法的研究。通过与世界各地领先的医疗机构的合作,该基金会能够支持对 EHE 潜在新疗法的开创性研究。

除了资助研究计划外,EHE 基金会还为患者及其家人提供支持服务。这包括通过在线论坛和当地支持团体将他们与其他受这种疾病影响的人联系起来。

该基金会还提供有关 EHE 的教育资源,以便患者可以更好地了解他们的诊断并就他们的治疗方案做出明智的决定。这包括有关临床试验以及可能可用的替代疗法的信息。

EHE 基金会工作的另一个重要方面是代表受这种疾病影响的人进行宣传。通过提高人们对患有 EHPHILIPENDOENDOTHELIALIOMA 等罕见疾病的个人所面临挑战的认识,该基金会希望鼓励政策制定者和医疗保健提供者优先研究新疗法。

总体而言,EHE 基金会是受这种罕见癌症影响的个人和家庭的重要资源。通过其资助研究、提供支持服务和倡导患者权利的承诺,该基金会在对抗 EHE 方面产生了重大影响。

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The ehe foundation

The ehe foundation

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