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V
8 几个月前

I recently came across a website dedicated to fami...

I recently came across a website dedicated to familial hypercholesterolemia awareness and support. The information and resources provided were incredibly informative and helpful for individuals and families dealing with this condition. The articles and tools available on the website were well-written and easy to understand, making it easier to navigate through the complexities of managing this genetic disorder. I appreciate the efforts made by the organization to raise awareness and provide a supportive community for those affected. The resources, including the educational materials and support networks, have been invaluable in helping me understand more about this condition and how to manage it effectively. I would highly recommend this website to anyone seeking reliable information and support related to familial hypercholesterolemia.

B
9 几个月前

The fh foundation has definitely exceeded my expec...

The fh foundation has definitely exceeded my expectations. Their team is not only knowledgeable but also very friendly and approachable. I am grateful for the support they have provided me in managing my condition.

R
10 几个月前

I had the pleasure of interacting with The fh foun...

I had the pleasure of interacting with The fh foundation and it was an incredible experience. Their team was knowledgeable and supportive throughout the process. Thank you for all your help!

M
11 几个月前

I recently availed the services of a foundation an...

I recently availed the services of a foundation and I must say, they were incredibly helpful and efficient. The team at this foundation provided me with all the necessary information and assistance I needed. I am highly satisfied with their services.

G
11 几个月前

👍 I just want to express my gratitude to The fh fo...

👍 I just want to express my gratitude to The fh foundation for their outstanding services! They went above and beyond to assist me and ensure that all my needs were met. The fh foundation is truly a remarkable company that puts their customers first. 👍

N
12 几个月前

The fh foundation has been instrumental in helping...

The fh foundation has been instrumental in helping me manage my condition. Their expertise and guidance have made a significant difference in my life. I highly recommend their services.

M
1年以前

The fh foundation has been a lifesaver for me! The...

The fh foundation has been a lifesaver for me! Their knowledgeable team helped me navigate through the complexities of managing my condition. I can't thank them enough for their support and dedication. I highly recommend The fh foundation!

A
1年以前

I recently had the opportunity to interact with Th...

I recently had the opportunity to interact with The fh foundation and I must say, my experience was nothing short of excellent. The team at The fh foundation was knowledgeable, professional, and extremely helpful. They provided me with all the information I needed and answered all my questions in a timely manner. I highly recommend The fh foundation for anyone looking for exceptional service.

K
1年以前

❤️ I just want to take a moment to appreciate The ...

❤️ I just want to take a moment to appreciate The fh foundation for their exceptional service. They have been extremely helpful and knowledgeable in addressing my concerns. Thank you so much for your support! ❤️

A
1年以前

I had a great experience with this company. They w...

I had a great experience with this company. They were very helpful and provided me with all the necessary information. The fh foundation is definitely a reliable and trustworthy organization.

关于The fh foundation

FH 基金会:领导抗击家族性高胆固醇血症和脂蛋白 (a)

FH 基金会是一个非营利组织,致力于提高对家族性高胆固醇血症 (FH) 和脂蛋白 (a) (Lp(a)) 患者的认识、开展研究和宣传。该组织由 8 岁时被诊断出患有 FH 的凯瑟琳·威尔蒙 (Katherine Wilemon) 于 2011 年创立,已成为抗击这些遗传病症的主要代言人。

家族性高胆固醇血症是一种遗传性疾病,从出生起就会导致高水平的低密度脂蛋白胆固醇。这种情况影响全世界大约 250 人中的 1 人。如果不及时治疗,它会导致早发性心脏病和中风。 Lp(a) 是另一种导致血液中高水平 Lp(a) 胆固醇的遗传病症。它影响全世界大约五分之一的人,还可能导致早发性心脏病。

FH 基金会的使命是通过教育、宣传、研究和创新改善这些疾病的诊断、治疗和管理。该组织与患者、医疗保健提供者、研究人员、政策制定者、行业合作伙伴密切合作以实现其目标。

FH 基金会的主要举措之一是其 CASCADE FH 注册计划。该计划从美国各地收集 FH 患者的数据,以更好地了解这种情况如何影响患者的生活。该注册表还有助于确定护理方面的差距,以便医疗保健提供者可以为患者提供更好的治疗选择。

FH 基金会的另一项重要举措是其 FIND-FH 计划,该计划旨在识别尚未确诊但有患家族性高胆固醇血症或其他遗传性高胆固醇(如 Lp(a))风险的个体。通过这个项目,他们为那些符合某些标准的人提供免费的基因检测,比如有家族史或早发性心血管疾病。

除了这些旨在通过数据收集和识别努力改善患者结果的计划外; FH 基金会还为患者和医疗保健专业人员等提供教育资源,包括关于“如何与您的医生讨论家族性高胆固醇血症”或“了解您的胆固醇测试结果”等主题的网络研讨会。

此外,他们还开发了一款名为“KnowFH”的应用程序,可帮助用户跟踪自己的健康信息,尤其是与家族性高胆固醇血症相关的信息,包括用药提醒和预约安排功能等。

总体而言,家庭心脏基金会在提高对家族性高胆固醇血症和脂蛋白 (a) 的认识方面取得了重大进展,为患者和医疗保健专业人员提供资源,同时通过 CASCADE-FH 注册计划和 FIND 等创新研究计划不懈努力寻找新的治疗方案-FH 计划。他们致力于与这些疾病作斗争,帮助无数人接受了正确的诊断/治疗,同时为更好地理解/管理策略铺平了道路!

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The fh foundation

The fh foundation

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