评论 9
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M
6 几个月前

I recently visited the website and found the resou...

I recently visited the website and found the resources to be quite informative and helpful for understanding and managing the challenges associated with Tourette syndrome. The layout and design of the website, however, could use some improvement to enhance the user experience. 🌐 While the organization's mission is commendable, I believe there is room for more engaging content and a more user-friendly interface to better serve the community. Overall, it's a decent starting point for those seeking information and support, but there's potential for enhancing the website's accessibility and appeal.

K
6 几个月前

💯 The Tourette Syndrome Association is top-notch. ...

💯 The Tourette Syndrome Association is top-notch. Their website is user-friendly and comprehensive. I appreciate the inclusion of emojis to express emotions. The TSA has been a game-changer for individuals with Tourette syndrome. I highly recommend their resources and support.

B
7 几个月前

I am so grateful for the support of the Tourette S...

I am so grateful for the support of the Tourette Syndrome Association. They have helped me and my family navigate the challenges of Tourette syndrome. Their website is a treasure trove of information and resources. I love how they use emojis to convey complex emotions. The TSA truly understands the needs of individuals with Tourette syndrome.

T
7 几个月前

I had a great experience with the Tourette Syndrom...

I had a great experience with the Tourette Syndrome Association. Their website is well-designed and user-friendly. I was easily able to find the information I needed about Tourette syndrome. The resources and support they provide are invaluable. The staff is knowledgeable and compassionate. I highly recommend the TSA for anyone seeking information or support regarding Tourette syndrome.

A
9 几个月前

I have been relying on the Tourette Syndrome Assoc...

I have been relying on the Tourette Syndrome Association for years. Their website is my go-to resource whenever I need information or support related to Tourette syndrome. The content is well-written and easy to understand. I appreciate that they focus on facts rather than promotional language. The TSA is a trusted source of information for me.

S
9 几个月前

I found the resources provided by tsa-usa.org extr...

I found the resources provided by tsa-usa.org extremely helpful. Their website is informative and easy to navigate. The information about Tourette syndrome was comprehensive and up-to-date. I appreciate the effort they put into educating the public about this condition. The TSA has been an invaluable resource for me.

S
9 几个月前

👍 The Tourette Syndrome Association has made a sig...

👍 The Tourette Syndrome Association has made a significant impact on my life. Their website is a valuable source of information and support. I love how they use emojis to convey empathy and understanding. The TSA truly goes above and beyond to provide resources and guidance to those with Tourette syndrome.

L
9 几个月前

The Tourette Syndrome Association has been a lifel...

The Tourette Syndrome Association has been a lifeline for my family. Their website is a wealth of information about Tourette syndrome and related disorders. The resources they provide have been vital in helping us understand and cope with this condition. I can't thank them enough for their dedication and support.

T
11 几个月前

The Tourette Syndrome Association has been an inva...

The Tourette Syndrome Association has been an invaluable resource for me and my family. Their website is easy to navigate and full of helpful information. The use of emojis adds a personal touch to the content. I appreciate the positive and hopeful tone they convey throughout their resources. Thank you, TSA!

关于Tourette syndrome association

图雷特综合症协会:为图雷特综合症患者提供支持和宣传

图雷特综合症协会是一个非营利组织,旨在为图雷特综合症 (TS) 患者及其家人提供支持、宣传和教育。该协会由患有 TS 儿童的父母于 1972 年成立,他们正在为他们的孩子的病情寻求信息和支持。

TS 是一种神经系统疾病,其特征是重复的、不自主的运动和称为抽动的发声。这些抽动的程度从轻微到严重不等,并且会严重影响个人的日常生活。虽然无法治愈 TS,但有一些治疗方法可以帮助控制症状。

图雷特综合症协会的使命是提高人们对 TS 的认识,为受该病影响的人提供支持,倡导对其原因和治疗的研究,并促进社会对 TS 患者的接受。

该协会实现其使命的方式之一是通过其网站。该网站提供了大量有关 TS 的信息,包括症状、诊断、治疗方案、研究更新和家庭资源。它还提供了一个论坛,患有 TS 的人或其家庭成员可以在这里与其他有类似经历的人联系。

除了在其网站上提供有关 TS 的信息外,图雷特综合症协会还为学校和工作场所提供教育计划。这些计划旨在提高教师、雇主、同事和同学对 TS 的了解,以便 TS 患者在这些环境中得到更好的支持。

该协会工作的另一个重要方面是宣传。该协会在州和联邦层面倡导有利于 TS 等残障人士的政策。这包括提倡增加对 TS 病因研究的资助,以及确保获得适当医疗保健服务的政策。

最后,图雷特综合症协会在北美各地提供支持小组,受此病症影响的个人可以通过 Zoom 或 Skype 等视频会议平台面对面或虚拟地联系。这些小组提供情感支持以及管理症状的实用建议,治疗方案,以及在患有这种疾病的同时驾驭社交场合。

总之,图雷特综合症协会在支持图雷特综合症患者方面发挥着重要作用。他们在提高认识、研究治疗方案和在各个层面进行宣传方面所做的努力使他们成为致力于改善受图雷特综合症影响的生活的最受尊敬的组织之一.如果您或您认识的人最近被确诊,您今天应该访问他们的网站!

已翻译
Tourette syndrome association

Tourette syndrome association

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