This organization is doing a fantastic job in the ...
This organization is doing a fantastic job in the community. They provide important services and support to those in need. I'm grateful for their presence.
This organization is doing a fantastic job in the community. They provide important services and support to those in need. I'm grateful for their presence.
🌟 Great Lakes Hemophilia Foundation is simply amazing! Their commitment to helping others is truly inspiring. I'm grateful to be a part of their community. Highly recommend! 😁
The services provided by this organization are top-notch. I appreciate the support I received from them. The team at glhf.org is very knowledgeable and helpful.
The team at Great Lakes Hemophilia Foundation is doing an outstanding job. Their support and dedication are commendable. I'm glad to be a part of this community.
💯 Great Lakes Hemophilia Foundation has exceeded my expectations. The services provided by them are exceptional, and the team is amazing. I highly recommend glhf.org to everyone! 👏
👍 Great Lakes Hemophilia Foundation is doing an amazing job in supporting the community. I'm glad to have found such a reliable organization. Keep up the good work! 😊
I wanted to express my appreciation for the great work Great Lakes Hemophilia Foundation is doing. They truly make a difference in people's lives. The support they provide is invaluable.
I am grateful for the support and guidance I received from this organization. Their services have been invaluable to me. I highly recommend them to anyone in need.
I am very impressed with the work Great Lakes Hemophilia Foundation does. They have a great team that is always ready to help and support. The services they provide are excellent and have made a huge difference in the lives of many people. I highly recommend this organization!
Great Lakes Hemophilia Foundation is a trustworthy and reliable organization. Their dedication to helping people is commendable. I have seen firsthand the positive impact they have made in the lives of many. The services provided by glhf.org are exceptional.
Great Lakes 血友病基金会:教育、支持和倡导威斯康星州的出血性疾病社区
Great Lakes 血友病基金会 (GLHF) 是一家非营利组织,自 1958 年以来一直为威斯康星州的出血性疾病社区提供服务。该基金会的使命是教育、支持和倡导受血友病、von 等出血性疾病影响的个人和家庭Willebrand 病和其他罕见的凝血因子缺陷。
教育是 GLHF 工作的重要组成部分。该基金会为患者、家庭、医疗保健提供者和公众提供有关出血性疾病的教育资源。这包括有关诊断、治疗方案、控制症状和患有出血性疾病的信息。 GLHF 还提供研讨会、会议和网络研讨会等教育计划,以帮助患者了解研究和治疗的最新进展。
除了教育之外,GLHF 还为整个威斯康星州的出血性疾病患者提供支持服务。这包括对保险或政府计划未涵盖的医疗费用的经济援助;意外医疗危机的紧急经济援助;患者可以与分享他们经历的其他人建立联系的同伴支持小组;宣传服务,以帮助患者解决保险范围问题或获得所需的治疗;和社交活动,为患者提供在临床环境之外相互联系的机会。
倡导是 GLHF 工作的另一个重要方面。该基金会代表州和联邦两级的出血性疾病社区进行宣传。这包括倡导改善获得医疗服务的政策;支持对新疗法或疗法的研究;提高决策者、医疗保健提供者和公众对出血性疾病的认识;与其他组织合作处理相关问题,例如罕见疾病或残疾人权利;通过基层组织让患者参与宣传工作。
GLHF 在其 6 多年的运营中对威斯康星州社区的影响是巨大的。该基金会已帮助数以千计的出血性疾病患者获得他们有效管理病情所需的关键资源,同时还提高了医疗保健提供者、政策制定者和可能不熟悉这些疾病的公众对这些疾病的认识。
如果您正在威斯康星州寻找与出血性疾病相关的信息或支持——无论您是自己与出血性疾病同住的人还是关心出血性疾病患者的人——大湖血友病基金会应该是您的第一站。凭借其全面的教育资源、支持服务和旨在改善受这些情况影响的人的结果的宣传工作,GLHF 真正脱颖而出,成为该社区中的宝贵资源!