The sickle cell foundation of tennessee

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J
9 几个月前

💯 The Sickle Cell Foundation of Tennessee has been...

💯 The Sickle Cell Foundation of Tennessee has been instrumental in providing support to individuals and families affected by sickle cell disease. Their website is a fantastic resource, offering important information and assistance. I'm grateful for their work.

e
10 几个月前

I had a positive experience with the Sickle Cell F...

I had a positive experience with the Sickle Cell Foundation of Tennessee. Their website is informative and easy to navigate. They provide great support and resources for individuals affected by sickle cell disease. Keep up the good work!

G
11 几个月前

I had an average experience with the Sickle Cell F...

I had an average experience with the Sickle Cell Foundation of Tennessee. The organization's website was informative and easy to navigate. However, I feel that they could improve their communication with patients and provide more support.

K
1年以前

As a customer, I can say that the Sickle Cell Foun...

As a customer, I can say that the Sickle Cell Foundation of Tennessee has been a valuable resource for me and my family. The organization's website is informative and easy to navigate. They provide helpful support to individuals affected by sickle cell disease. I appreciate their efforts.

M
1年以前

🙌 The Sickle Cell Foundation of Tennessee is doing...

🙌 The Sickle Cell Foundation of Tennessee is doing an excellent job in raising awareness about sickle cell disease. Their website provides valuable resources and information for the community. I truly appreciate their mission!

Q
1年以前

👍 The Sickle Cell Foundation of Tennessee is an ex...

👍 The Sickle Cell Foundation of Tennessee is an excellent organization that provides vital support to individuals and families affected by sickle cell disease. Their website is comprehensive, user-friendly, and packed with helpful resources. I highly recommend their services!

T
1年以前

I recently came across a foundation that supports ...

I recently came across a foundation that supports individuals with sickle cell disease. Their website is informative and provides useful resources. I found it helpful in understanding the condition better and raising awareness.

N
1年以前

The Sickle Cell Foundation of Tennessee is doing g...

The Sickle Cell Foundation of Tennessee is doing great work in raising awareness and supporting individuals affected by sickle cell disease. Their website is a valuable resource. However, it would be even better if they expanded their outreach efforts to reach a wider audience.

关于The sickle cell foundation of tennessee

田纳西州镰状细胞基金会:通过研究、教育、意识和宣传改善生活

镰状细胞病是一种遗传性血液病,影响全世界数百万人。它是由一种异常的血红蛋白分子引起的,这种异常的血红蛋白分子会导致红细胞变得僵硬并呈镰刀状,从而导致一系列健康问题,例如慢性疼痛、器官损伤、感染和中风。尽管镰状细胞病可以影响任何人,无论种族或民族如何,但它对非洲人后裔的影响尤为严重。

田纳西州镰状细胞基金会 (SCFT) 是一个非营利组织,致力于改善田纳西州及其他地区镰状细胞病患者的生活。 SCFT 于 1978 年由 Bobby Bell 博士和其他认识到需要更好地照顾该州镰状细胞病患者的相关公民创立,此后已发展成为镰状细胞倡导和研究的主要代言人。

SCFT 的核心使命简单而有力:通过研究、教育意识和宣传,改善镰状细胞病患者的治疗、护理质量、生活质量和长期前景。为了实现这一使命,SCFT 在几个方面孜孜不倦地工作:

研究:SCFT 支持对镰状细胞病各个方面的前沿研究——从基础科学到临床试验——目标是找到新的治疗方法,甚至治愈这种使人衰弱的疾病。该基金会还与美国国立卫生研究院 (NIH) 等其他组织合作,以推进有关镰状细胞病的科学知识。

教育:SCFT 向患者、家庭、医疗保健提供者、教育者、政策制定者、学生、媒体、社区团体、信仰组织、企业等提供有关镰状细胞病的教育资源。这些资源包括手册、情况说明书、视频、网络研讨会、会议、研讨会、支持团体等。该基金会还与合作伙伴合作与学校、大学、医院、诊所、教堂、社区中心、图书馆、博物馆等合作。提高人们对这种经常被误解的情况的认识。

意识:SCFT 通过社交媒体活动、社区活动和公开演讲等各种外展活动提高人们对镰状细胞病的认识。该基金会还与地方和国家媒体机构合作,促进对镰状细胞病的准确和正面报道。

宣传:SCFT 在地方州、国家和国际层面倡导镰状细胞病患者的需求。该基金会与政策制定者合作,确保镰状细胞病患者能够获得优质的医疗保健服务,包括预防保健、疼痛管理、心理健康支持和其他基本服务。 SCFT 还提倡增加对镰状细胞研究的资助。

SCFT 对镰状细胞病患者生活的影响是巨大的。通过其研究工作,该基金会在理解这种复杂情况方面取得了重大突破。它的教育资源帮助了无数患者家庭、医疗保健提供者、教育者、政策制定者、学生、媒体机构、社区团体、信仰组织、企业等。更好地了解如何有效地管理这种情况。它的宣传活动有助于减少与镰状细胞病相关的耻辱感,同时提高公众对其对个人和社区影响的了解。

总之,田纳西州镰状细胞基金会是一个至关重要的组织,在改善田纳西州及其他地区镰状细胞病患者的生活方面发挥着关键作用。通过其研究教育意识倡导工作,它在寻找新疗法甚至治愈这种衰弱状况方面取得了重大进展,同时提高了包括决策者医疗保健提供者教育者学生媒体机构社区团体信仰组织企业等在内的各种利益相关者对此的认识。如果您有兴趣支持 SCFT 的使命或了解更多有关如何参与的信息,请立即访问他们的网站!

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The sickle cell foundation of tennessee

The sickle cell foundation of tennessee

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